All of my life, I have loved and cared for people with special needs, especially my Brother, Bally. I have watched my parents and other parents provide the best possible life for their "special" children. The ups and downs of caring for a special needs person can be filled with tears of joy and tears of frustration. The frustration, from what I have found, is not that there are not enough services or programs to help them raise their children, but the difficulties of finding those services and programs.
Bally is now in his forties, and life with him has been a blessing. However, we have faced challenges that would not have been so difficult if we had one organization to guide us to the services and programs we need to better his life. The following is one example; we have a wonderful case manager and care provider for Bally. However, Bally has always worn diapers and we found out 3 years ago that the diapers have always been available to us at no cost. It is not that our management team was not aware that he wears diapers - it is the fact that no one thought to ask where we would get his diapers. The list can go on and on for families: Where can we find a doctor? Where can we find transportation? How do I get a waiver? How on earth can anyone fill out all of this paperwork and still care for not only our special needs child, but their other children as well?
People with special needs live wonderful, meaningful lives. They may have been born with special needs, been hurt in an accident or return home from serving our country disabled or are elderly. Families need to spend their time caring for the family members with special needs, not spend their time searching out the services and programs that can be provided to them.
The Bally Foundation will directly match those with special needs and their caregivers with services and resources in a 25, 50, 75 mile radius from their location. The caregiver will create a protected profile of the person facing a challenge and then our system will offer a list of providers in their area. Within a few years, we will develop a call center, “String Cans”, so a caregiver with questions can directly speak to a qualified representative.
For years, Bally would carry a small can around as a security item. Bally would imagine this can was a drum, camera, radio or anything that would come to his mind. I realized, if Bally could make this can into anything he wanted. Then, we CAN help those facing challenges and their families live more productive lives. To become involved with the Bally Foundation, please visit our other pages. I do hope that our website helps your family. As you know, those with special needs are blessings and not burdens and together we CAN help each other.
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